tag:blogger.com,1999:blog-2584570468185542765.post1118995962283880826..comments2022-03-27T06:30:56.890-05:00Comments on Austin's IS Journey: New motivation...Hollihttp://www.blogger.com/profile/00535016211470087504noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-2584570468185542765.post-47877696412594199312008-10-15T17:58:00.000-05:002008-10-15T17:58:00.000-05:00THAT is alot of ZOnegran! Let the doc know he is s...THAT is alot of ZOnegran! Let the doc know he is sleeping all day..they may lower it slightly...my madie is on 200mgs! she is almost 23 pounds...<BR/>Oh big guy...Im thinking of you. I agree MAMA KNOWS BEST!! <BR/>Sometimes I almost think I could deal with a funny foot or a weird eye or crooked fingers THAN THIS!<BR/>YOu are SO in my thoughts...I just know what you are going thru...man oh man... I agree he is a lucky guy :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2584570468185542765.post-10301929606201915772008-10-15T14:58:00.000-05:002008-10-15T14:58:00.000-05:00ditto on Jen's thoughts.I'm the same way with want...ditto on Jen's thoughts.<BR/><BR/>I'm the same way with wanting to know. It's hard enough living with seizures...but then to not know why...it's horrid. Even though getting sad news is hard on the heart...for me...it's better than the not knowing. I'd just rather know. <BR/><BR/>And you're right. Even the most involved neuro isn't the same as our insight on our kids. I'll never forget when I showed the clip of Trevor's spasms to the neuro...I was mortified that he could see THE SAME thing I did. And think it was innocent! Thank God I'm pushy...and got an EEG! lol <BR/><BR/>Anyway...you sound jazzed up! Austin's a lucky little guy! <BR/><BR/>...danielleDanielle https://www.blogger.com/profile/04484341169494632974noreply@blogger.comtag:blogger.com,1999:blog-2584570468185542765.post-23447825631344422542008-10-15T07:01:00.000-05:002008-10-15T07:01:00.000-05:00It's such a powerful feeling when you take control...It's such a powerful feeling when you take control of the situation. You are right, the doctors know what the doctors know, but WE know our babies, far better than they ever will.<BR/><BR/>Congrats on taking this step and taking control. The neuros are there to guide you, but they can't guide, what they don't see!JSmith5780https://www.blogger.com/profile/16954759123115546248noreply@blogger.com