tag:blogger.com,1999:blog-2584570468185542765.post3832857320093190227..comments2022-03-27T06:30:56.890-05:00Comments on Austin's IS Journey: Another clipHollihttp://www.blogger.com/profile/00535016211470087504noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-2584570468185542765.post-72790949759994906912010-06-26T22:11:21.856-05:002010-06-26T22:11:21.856-05:00Seizures take on so many "personalities"...Seizures take on so many "personalities", don't they? So many folks have seen some of Colby's "behaviors" and thought they were seizure activity when they were simply just his self-stim thingies...And vice versa! <br /><br />You will do the right thing...As the girls have said above...I wish I could be of some help...<br /><br />I DO know one thing...Isn't it SO hard to sit and capture the seizures on camera and NOT be able to just take him in your arms to comfort him? I HATE that....I'm sorry....Breaks my heart...<br /><br />Austin has the sweetest, sweetest smile.....<br /><br />CyndiColbyhttps://www.blogger.com/profile/05100340319951092104noreply@blogger.comtag:blogger.com,1999:blog-2584570468185542765.post-90514837799394534652010-06-25T23:51:56.031-05:002010-06-25T23:51:56.031-05:00I agree with Danielle...follow your heart. Becaus...I agree with Danielle...follow your heart. Because there is NEVER a right or wrong path to take in this crazy IS world. We were all over the spectrum with Sophie...pushed meds to no meds to alternative treatments. There are so many paths to take that you have to trust what feels right.Sophie's Story by Elainehttps://www.blogger.com/profile/00415731740298071423noreply@blogger.comtag:blogger.com,1999:blog-2584570468185542765.post-90784102078196295072010-06-23T08:18:12.664-05:002010-06-23T08:18:12.664-05:00What about a MEG scan instead? I know Chugani lea...What about a MEG scan instead? I know Chugani leans very heavily on the PET scan. But the MEG scan is becoming increasingly exciting...because it can reveal real time electrical activity like the GRIDS do. Follow your heart on this. I know how hard it is to keep pushing and fighting and coming up empty. Even though Chugani told us yes...we were told no by several neuros first. I know how much energy (that we don't have) it takes to keep pursuing. Especially when the answer is murky. But I think you should push for this...<br /><br />((((((hugs)))))) <br /><br />...danielleDanielle https://www.blogger.com/profile/04484341169494632974noreply@blogger.com