tag:blogger.com,1999:blog-2584570468185542765.post7930519746904908533..comments2022-03-27T06:30:56.890-05:00Comments on Austin's IS Journey: I got some kisses! xoxoHollihttp://www.blogger.com/profile/00535016211470087504noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-2584570468185542765.post-42077441759896591942008-11-05T16:09:00.000-06:002008-11-05T16:09:00.000-06:00Trevy's stingy with the kisses too! But it sweet t...Trevy's stingy with the kisses too! But it sweet to see! <BR/><BR/>...danielleDanielle https://www.blogger.com/profile/04484341169494632974noreply@blogger.comtag:blogger.com,1999:blog-2584570468185542765.post-30655367072523793832008-11-04T16:39:00.000-06:002008-11-04T16:39:00.000-06:00We have begun the new med as of "friday night" can...We have begun the new med as of "friday night" cannot say...I am on the edge of my seat.watching her always! She has been a bundle of noises today..and her sleep is all screwy from this gosh darn time change! gah! Saw only ONE seizure yesterday as reported by Grandma.... The day is not over yet today...She said she slept for 2 hours after! they are strong when she does seize I tell ya....<BR/>she has been a picky eater as well today..and I am just NOT getting that I NEED her to pack some pounds on! If onlY I could go that long without food!! <BR/>Doc says if Depakote works we can begin to wein her off her Clonopin and her Zonegran..with all those at once it can risk Liver damage! and Kidney damage! Eeeek!! Wants new drug in system before any serious weining begins...GAH!<BR/>Oh lil Austin...I tell ya those spasms wiped madie out! she slept so much! She never had clusters but usually a ton of singles... they were so hard for us to catch...we always just brushed them off as some weird baby moves...little did we know..<BR/>That is very weird about one side of his body..I cant explain that one...you are maybe right with the one side of his brain theory...Hmmmm....<BR/>Being summoned by a small bird right now...Ill be in touch...<BR/>HANG IN THERE!!! :) :)Jamiehttps://www.blogger.com/profile/08806816819294256310noreply@blogger.com