We still see clusters. Decrease/Increase? Not sure. Some days are better...some not so much. One improvement is drop seizures. Whether they were atonics all along, who knows, but whatever they were/are, they are very seldom seen. I'd say confidently 90% of his seizures are infantile spasms and occurring in clusters. The other 10% are coming in singles, and the majority of the time it is VERY much like a spasm. A sharp jerk. Startle looking. Know-it-all nurse told me a couple weeks ago it sounded like atonics (because she said a drop is always an atonic) with generalized features. Honestly, our little conversations got my head spinning so much, I gave up on it for now. I know what I see. I've seen spasms for over a year now. These look very much like spasms. I'd like to think she is clueless to boost my confidence a little. But, then again, I'm not an epilepsy clinic nurse either. So I put it to rest with the notion that maybe more observation will tell. So far, I'm still thinking spasms.
Anyway, we reached our treatable dose on Felbatol (2mls 3x daily) last Tuesday. Today we increased to 2.5mls 3x daily. Still waiting to see where this one takes us.
To seizure freedom I hope!