Tuesday, February 16, 2010

Finally...

...something that seems to be at least helping the seizures.

They are still very much here, and very much a part of everyday...but they are better.

There was some improvement before we even left the hospital (I didn't want to get ahead of myself and post it though), and at least 50% or more reduction until Sunday. Sunday and Monday were a bit higher, but today is much better. I've only seen 34 so far (before the diet, he'd already had over a hundred by this time).

It's still way too early to make any assumptions about how well it's going to work for Austin, but it's looking very promising at least right now. I've never seen such consistent results from any treatment since he began having seizures almost two years ago. Even though he's been topping out between 60-100 (average) a day this past week, and this would have been extremely high for him a year ago, it's quite an improvement. They had been steadily increasing since August, and by Christmas, I would estimate he was having somewhere in the range of 200-300 a day. So, 34 at 4:30 pm is wonderful for him right now.

Like I said though...still too early to draw any conclusions...but he's doing very well right now. His energy level is still quite low, but there seems to be improvement there each day as well.

I'm just going to take this one day at a time and see what happens. Hopefully, we will continue to see more and more improvement...

4 comments:

Stephanie said...

Hi--I've been following your blog for several months since my LO was diagnosed with IS 8 months ago. I hope and pray Austin continues to find some improvement with the Keto diet. I feel your exhaustion, stay strong mama.

JSmith5780 said...

Any reduction is better than no reduction. I hope with some tweaking the number will become even smaller!

Hang in there, you are doing GREAT!

Colby said...

Well, I must say, 34 is an AMAZING reduction....Is there a "honeymoon period" as with new meds? I hope not....

Just think...once his little body completely adjusts, perhaps the numbers will continue to drop!!!

Keep us posted....Stay strong....

Cyndi

baby trevor's mommy said...

Enjoy the break, hon.

xoxo

...danielle