Monday, April 13, 2009

Easter prayers











Not sure whether it was the two new prayer blankets, yanking the Melatonin, the moon on the decrease...or Austin's weird seizure-cycling...But, there is a decent improvement in spasms since yesterday. They're not gone (dang it), but definitely better.

Yes, I was presented with two beautiful handmade prayer blankets for Austin yesterday. One from my mother-in-law's church and the other from my best friend's parents' church. What thoughtfulness and talent goes into each one of those. It melts my heart. Someone sat down and made this for my family. My Austin. Saying a prayer for him. They've never even met him. It certainly turned my day around.

It started kind of blah yesterday. Expecting severe weather, we weren't able to get out until after 2 pm. What a beautiful day it turned out to be though.
No egg hunt for Austin, but he got some goodies and a few plastic eggs from Grammer...still waiting to see if he'll discover his surprise inside on his own...

Another big upside of the day. Getting to see Ali again after...oh, six months probably...My lifelong best friend. Growing up, moving off, getting married...makes it harder every year to get together. She hadn't seen Austin since last July. Regardless, though, she's always been right here for me throughout this whole IS ordeal. Just a phone call away! But so nice to see her and the fam again after so long!

Anyone ever hear of the full moon affecting seizures? Our OT swears by it. Dunno. She says all her seizure kids' go up during a full moon. Never really noticed with Austin much.

I also stopped the Melatonin over the weekend. I tapered a bit...not really knowing what to expect after so long (he'd been on it since December). I read on my IS group that some neuros have said it can increase seizures. I never really paid much attention because our epi recommended it. He's off it now though...Sleeping just fine...well it's not any worse, we'll put it that way!

Even though he's not and hasn't been seizure free for almost a year now, I always welcome these "good" days...He's happier, more alert, gets more freedom to roam...I'll take it!

4 comments:

Jamie said...

OH-M-god! look at this kid! he looks great!! lol
No news from me...just workin on my skinny-mini kid :)

Sophie's Story by Elaine said...

I LOVE the good days...warms the heart.

baby trevor's mommy said...

Trevy LOVES prayer blankets...although it's more the fact that they're made from yarn & he's huge on the tactile sensory stuff...

Anyway...

I hope the good trend continues!

...danielle

Jamie said...

my hubby says "pfff! Im not payin this one!" Ohhh I hear ya...Happy Neuro apt tomorrow :)