Friday, April 17, 2009 IS expert???

During Chad's visit this morning with his endocrinologist, they somehow got on the subject of Austin and his IS.

According to him...Infantile Spasms are usually caused by a change in diet! What tha...???

So confident he said, "Think back to when the spasms started...Was there a change in his diet?"

Chad told him we've taken him to one of the top neurologists in the world for IS and they've run numerous tests and so forth...

And he fired back, "Of course they've run tests...they'll keep running tests...that's what makes them money!"


I'd like to think it could be that simple.

Kind of like when some people tell me (upon hearing of Austin's diagnosis)..."Oh, not to worry, he'll grow out of it...they always do."

Sparing them the details of the disorder, I usually smile and reply, "Wouldn't that be great?"


JSmith5780 said...

Considering most kids that get it are infants and either exclusively on breastmilk or formula, I find this hard to believe.

Holli said...

Jen -My thoughts exactly!

blogzilly said...

Yeah...ya just hate to hear that kind of talk, there simply is no evidence to support it and it plants too many weird seeds in people's heads.

Now I'd be the first to say that yeah, what we consume probably affects us all in ways nobody really fully understands, but to say IS is caused by diet changes is just,'s negligent.

baby trevor's mommy said...

Love the new look. And am totally stealing the way you list your meds! Simple rocks!

And seriously...I thought I'd heard pretty much every line out there about IS! It is negligence!


Sophie's Story by Elaine said... are kidding right??? I am in shock. I so wish it was that easy. By the way, Sophie was exclusively on breastmilk when her seizures started. Hmmm, maybe it was something that I ate ;)