Tuesday, August 11, 2009

Time for some firsts

We've made the trip up to the lake several times this summer...but always minus Austin. The summer heat has just been too much for him to handle with his previous dosages of zonisamide (one of the many side effects is decrease in sweat production and high risk of heat stroke). Until just recently, he could stay outside in our intense SE Texas sun for a maximum of 20 minutes at a time -maybe, providing he has a cool wash cloth, fans, and plenty of ice water. Our temps here are a bit much for the average person, much less a toddler who's on a med that can cause heat complications. Very little warnings to even know when he's getting overheated. No sweat and he's non-verbal. His skin would get warm to the touch and his little face would get flush. Other than that...no clue as to how he's tolerating the heat. Which is obviously dangerous.


But, fortunately, the baby sweat is picking up these days thanks to our steady decreasing of the med.

So...

To the lake we will go...with Austin in tow this time!

All the firsts this weekend has in store! His first trip to the lake, his first boat ride, the first full-size pool experience, first real getaway with the family (that doesn't include running from a hurricane or hospitals).

And talk about impeccable timing. The recent decrease in his meds mean an increase in his alertness. And curiosity. And interaction. And happy giggles not just seizure giggles (yes, he sometimes smiles and laughs between seizures -it's beyond me why he does this).

It happens to be coincidental that all this is occurring at the same time. We made reservations months ago...well before we knew of this med schedule.

So, I may not be blogging much, if any, until next week. The rest of this week is packed full with therapies, labs, chores, and of course the preparations for the big weekend. My only regret is that it's not all week! To get away from typical day to day life for a week would do us all justice!




Is it just me, or do you almost feel relaxed just by looking at these pictures?!

Oh, another first...the slide!

6 comments:

baby trevor's mommy said...

I'm SOOOOO happy you guys are getting away! And even MORE happy that it's with a happy, alert Austin! He'll have a blast...which means so will you. We're mommies...it just works that way!

You know...Trevor laughs/smiles with some of his seizures. But it's a different laugh. Almost TOO funny or smiles almost TOO big. It's weird. And I find it creepy. Probably because I don't understand it. Or maybe it's cause I know seizures aren't funny?

Anyway...

Go...have fun! Forget about the blog for a week or so!

...danielle

Holli said...

Danielle -Creepy, yes. Although, for a while, those were the ONLY smiles we got, and I was at least thankful he was smiling through them rather than crying through them. I still don't get it though. And he references me after some of the bigger ones, like "did you see that?"...and then smiles or laughs. It breaks my heart because he wants me to smile back at him...and I hate to reinforce those as positives...

Sophie's Story by Elaine said...

Getaways...a break from reality...is good for the heart. I can't wait to see all the pictures and hear all about your trip when you get back. So many first for Austin...how exciting!!!

Jamie said...

have a blast!! enjoy! take pictures! relax! Im so happy for your getaway! :)

baby trevor's mommy said...

So funny you should say it that way...about the "did you see that look"...cause that is how we explain the way Trevor looks at us too!

It is weird...but you're right. I prefer the smiles over the tears. We've had a good tear free stretch...although lately we're seeing a few a day with fear tears. Ugh...

Anyway...

Have fun, sweetie!

...d

blogzilly said...

Sounds like a great time will be had by all. JEALOUS! Of course, Texas is super hot, so I'm not THAT jealous. I lived there for 3-4 years, and the heat is what I remember the most.

Ironically, your post has a photo of a gazebo and my Word Verification is: gazerpo.

WEIRD....