I really don't remember exactly how it started. The debate Chad and I got into over immunizations and the link to Infantile Spasms. Did the DTaP play a part in Austin's seizures? We may never know. But, I certainly have my own ideas...whether they'll ever be confirmed...don't know.
I don't necessarily think that it caused it. I do believe it triggered it. I wish I could say that I knew for a fact the vaccinations caused it. Then, I would have someone or something to blame it on. But, I don't know that, so for now, we will just have to continue to be cautious with future vaccinations. Like I said in an earlier post, we did not get any one-year vaccinations. We may end up getting all but DTaP later, but I doubt we will ever get pertussis again.
Of course I want the secret to curing my baby's seizures more than anything. But, what I also want to know that would maybe put my spinning mind to ease, is a cause. Any cause. I want to know why my perfectly healthy, happy, developing six month old suddenly started to seize. Why our lives were suddenly turned upside down and inside out. How one day he was perfectly fine...and the next a child with epilepsy. We may never know why, but that's okay...as long as it stops.
So, with that being said...We have a new drug in the mix as of today! Yep, we FINALLY got it started. We're starting slow and going to work our way up to a steady dose within about three weeks. I'm holding my breath until then...
Thank you all for your support and encouragement! It was nice to hear from Janna and Alana! Thank you two for your prayers and sweet comments! It was great to hear from both of you...it's been years! Hope you are both happy and doing well!
Hopefully within the next week or so I will be able to report a dramatic decrease in spasms! Until then, please keep little Austin in your prayers. We really need this one to work!
5 comments:
Awwe.. I love these new pics. He's got his two front teeth! Here's to you vigabatrin.. Do us proud!
Holli,
I will definitely keep your family in my prayers. I can not even imagine what it must be like to have your baby going through so much when he's so little. I hope your new drug works and that Austin will be cured. Those pictures of him are so cute! I can see a lot of Chad in him! Good luck!
So what dosing plan did the Epi recommend?
I just loove the new pics..lol so happy! Ohhh things WILL get there!Let us know how this new drug works! Madie's neuro would not put her on it due to side effects with vision...
Dontcha wish Doctors could find one thing we all had in common that gave our kids spasms??
Chin up chickadee :)
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