waiting, waiting...

I'm anxiously (aaannn-xiously) waiting to hear back from Sarah in Detroit. She emailed me this morning saying that my insurance has determined that Austin is not eligible for coverage for the VMR. UUGGGHHH!!!!!!!
Sooooo, she said she was waiting on a fax of the denial letter to see exactly what they're disputing so she can go from there. She's also supposed to be talking to Dr. Chugani to see what he recommends.
Here we are less than TWO WEEKS away from this trip...I want to call my insurance company, but I'm trying to be patient and wait to see what she has to say first.
I knew, knew, knew there was going to be a problem with this one. After reading the criteria, I just knew it. First of all, since big shot doctor in Houston is refusing to help, I have no specialist backing me. He hasn't seen him since all this focus talk came up and doesn't seem interested to either. I was blown off by the nurses when I brought it up so I dropped it and went straight to Chugani. All I wanted was confirmation that I was not crazy for thinking there was a connection with his right side and his seizures. I got it from him, but never pushed it anymore with our local doctors...I thought I'd just drop them and find a new local doctor -and in the meantime, see Chugani. That probably backfired in my face...
Now, I don't have anyone (besides his pediatrician and a doctor who's never seen him) to "recommend" this procedure as medically necessary.
I honestly don't know what to do...I guess all I can do for the moment is wait to see what they say in Detroit.

By the way...thanks Jen. That was exactly what I was thinking...we have a new ally up there rooting for Austin!